What is the sequela of SARS?

Abstract: The sequela of SARS is the sequela left by the treatment and prevention of SARS, mainly because of the use of hormones. In 2003, in order to save lives, hormone drugs were widely used in the first aid of SARS, and the side effects of hormones led to femoral head necrosis in some patients. Nowadays, most of this group, known as patients with SARS sequelae, have a hard life, and 60% of their families have changed. Moreover, many people in this group are habitually forgotten. SARS has done great harm to their bodies and minds, and most of them have many sequelae such as lung diseases. It is particularly noteworthy that the psychological barrier caused by discrimination is called "post-SARS syndrome" by Academician Zhong Nanshan. For those who have recovered from SARS, overcoming the disease is only their first battle against SARS. How to overcome the psychological distress caused by SARS needs the joint efforts of the whole society. Sequelae of SARS [edit this paragraph] Background During the SARS period (2003), more than 5,000 cases of sequelae of SARS were reported nationwide, with 349 deaths. At present, only about 150 people in Beijing receive free treatment. Then, how many sequela patients have failed to enter the ranks of free treatment, and what is their situation? According to media reports, even some patients who receive free treatment in Beijing are still worried about their subsequent life. At the same time, many patients also suffer from psychological depression. A survey of college students shows that 39% of patients with major depression have sequelae. [Edit this paragraph] range 1, diffuse interstitial fibrosis of respiratory system; Interstitial pneumonia; Organic pneumonia; Focal fibrosis. 2. Ischemic lesion and necrosis of femoral head in motor system; Patients with hip synovitis after SARS 3. According to the provisions of the state, other diseases collectively recognized by the SARS prevention and control expert group as sequelae of SARS. [Edit this paragraph] Example Brief Introduction About 300 patients with SARS sequelae registered in Beijing; According to folk surveys, 80% left their jobs due to illness, and 60% had family changes. Osteonecrosis, pulmonary fibrosis and depression are almost common symptoms in patients with SARS sequelae. This group did not enter the public view until CCTV News 1+ 1 reported that their life was hard. For a long time, patients with SARS sequelae have been suffering from diseases and psychological problems and living in closed circles. In recent years, the government has also made a lot of efforts, including fixed-point free treatment and living allowance. However, after SARS, they are still afraid of the future. They are worried about the development of disease and the loss of life ability. Because of the family characteristics after SARS, they are also worried about who will take care of the sick family ... they are still trying to find a better life. The pub of SARS patients is very quiet in the dark. After a few glasses of wine, Fang Bo floated a little under the influence of alcohol. On September 28th, this middle-aged man with femoral head necrosis and pulmonary fibrosis tried to guess what kind of life he would live now without the sequelae of SARS. Many shots are magnified in his mind. Memories and conjectures made him uneasy and anxious. He smashed the wine bottle, used a piece of glass and poked it down on his forehead ... Fang Bo, who is currently waiting for surgery in the hospital (debridement of the humeral head on his right shoulder), has an obvious scar on his forehead. Other people in the "group" were not too surprised when they heard about Fang Bo's self-mutilation. In recent years, they have deeply realized this feeling of despair. They are a special "group"-patients with SARS sequelae. As a SARS patient who "narrowly escaped death", Fang Bo was once "intoxicated" until the symptoms of leg pain appeared six months later. Six years ago, Beijing was surrounded by SARS in 2003. Fang Bo is a successful breakthrough. Fang Bo, who suffered from SARS, was treated with glucocorticoid in Dongzhimen Hospital. In June of that year, he was cured and discharged. The slogan congratulating the patient on his recovery in the outpatient building and the scene of his family holding flowers to thank the medical staff are deeply imprinted in Fang Bo's mind. During that time, he was the "darling" of the media. As a "successfully cured SARS patient", he accepted an interview with Wang Zhi. Today, pride still appears in details such as tone from time to time. Judging from the video materials, he looked young and healthy at that time. He is even a little chivalrous: I heard that the serum of the cured person is helpful for research, so he took the whole family to donate it. He also signed an agreement to donate corneas and remains after his death. "During that time, I was a celebrity. I am resurrected and always want to give back. " Fang Wei recalled. It changed after half a year. After half a year, he felt pain in his leg and he couldn't breathe well. He went to the hospital for examination and found that it was the sequelae of SARS caused by excessive use of hormones. Fang Bo soon discovered that he was not an individual. In 2004, the Beijing municipal government screened and registered the cured SARS patients, and this group of people gathered spontaneously. Fang Bo met Zhang Jinping and other patients. [Edit this paragraph] The survey data shows that 57.97% of the patients have mental deterioration or memory loss; 55% patients feel that their attention is affected; 49.3% patients feel that their working ability is reduced and their working pressure is increased. 44.9% patients feel that it has a negative impact on their lives; 40.58% patients are easily excited; About 20% patients feel fear or loneliness; 65,438+0,000% patients think that they have received the warmth of their families and the support of their relatives and friends, which plays a very important role in their rehabilitation. 78% patients with SARS sequelae feel physical fatigue (29 cases, more than 42%); 74.3% patients are prone to sweating; 70% patients feel short of breath and breath; More than 50% patients feel palpitation, poor sleep, dry mouth and chest tightness; 26% patients' immune function declined in different degrees; 23.08% patients have small airway ventilation dysfunction; 65.58% patients' residual volume increased; 22.96% patients had mild pulmonary diffusion dysfunction; 36% patients still have pneumonia malabsorption or interstitial lesions (including 26% patients with severe pneumonia). [Edit this paragraph] It is suggested that what we need to do should be a long-term institutional "post-rescue" so that they can enjoy more specific and subtle human warmth and care while fighting with patients. Because a sound society is bound to have firm and permanent waiting and care, so that even the most marginal and powerless people will feel the warmth of human nature. This kind of waiting and caring based on "after-the-fact assistance" should first come from the institutional guarantee of government departments, and on this basis, it should be perfected by non-governmental organizations to the slightest warmth and touch. In this sense, only when these two forces forget them can they really be forgotten. Similarly, only when these two forces join hands can we really get warm. How to establish the system guarantee of government departments so as not to forget or abandon any patient? Perfecting an effective public health system is naturally the key, which is also its basic public conscience and mission. Therefore, for patients with SARS sequelae, our "post-rescue" in this respect is to get effective treatment for their diseases, ensure the stability of their lives and relieve their psychological depression; At the same time, establish a complete information tracking file for all SARS cases, pay close attention to their living and health conditions, and ensure that each of them can get permanent waiting and care. Of course, this also needs to make more scientific and perfect institutional arrangements.