What is a "frozen man"? Survey: Only 3% people know.

Do you know what a "frozen man" is? The survey shows that the public's understanding of the word "frozen person" is very low, with an average of 3 people per 100. In addition, patients with abnormal limb sensation and weakness are often mistaken for muscle atrophy, spinal cord injury or cerebellar atrophy.

Taipei Mayor Hao Longbin (middle) appeared with actors Jin Shijie (left) and Bo Xueliang to cheer for the patients who were gradually frozen. The three men held an enlarged version of "62 1 Electronic Invoice Love Code". (Photo/Luo Huiwen) "Frozen person" is actually a common name for "amyotrophic lateral sclerosis (ALS)". As the name implies, it refers to the gradual degeneration of motor neurons in the spinal cord, brain stem or motor cortex of the brain, causing muscle atrophy, general weakness, and even paralysis, respiratory failure and death at the end of the disease.

Shen Xinhui, director of the Association of Frozen People (formerly the Association of Motor Neuropathy Patients of the Republic of China), said that 15 years ago, when the association was established, it was named "Frozen People" in order to let more people know about "Amyotrophic Lateral Sclerosis". However, the association conducted a nationwide telephone survey in March this year and found that only 3% people knew about it.

In addition, according to the statistics of the Frozen People's Association, 20-30% of patients will turn to orthopedics, Chinese medicine, rehabilitation and even otolaryngology for help because of inexplicable falls, limb weakness, muscle atrophy, abnormal limb sensation or Lickitung, and are diagnosed with bone fatigue, bone spurs, stroke and spinal diseases. Some people buy a lot of rehabilitation equipment, accept folk therapy and have surgery, which not only can't improve. The disease of "gradually frozen people" needs detailed identification by the neurology team before it can be diagnosed.

Liu, chairman of the gradually frozen people's association, said that the gradually frozen people are no different from normal people except that they can't move physically and need the care of others in their daily lives. Therefore, many patients enjoy their talent and creativity in writing, conversation and calligraphy with the help of assistive devices.

Lin Yueru, a friend of the frozen patient (the person in yellow in the front row), was very creative and created a card sticker pattern of "Alocasia esculenta-Hope". (Photography/Luo Huiwen) "Liu pointed out that the public's concern and support will help patients with gradual freezing to find hope, so the association receives about 2 million to 3 million yuan in donations from the unified invoices donated by the public every year. However, in response to the paperless invoice policy, three kinds of stickers will be launched from now on, two of which were painted by patients Yuan and Lin Yuegu, and the other is the drama "The Last 6544" which tells the story of the frozen people.

As long as someone sticks the card on easycard or other cards, please ask the clerk to brush the love code of 62 1 to donate the electronic invoice to help the patients with gradual freezing. For those who don't have a card, just tell the sales staff that they want to donate the invoice to the Frozen People's Association with the love code of 62 1.