Traditional Culture Encyclopedia - Travel guide - Looking for an ostomy person

Looking for an ostomy person

"Ostomy person" is still an unfamiliar term to many people. In order to save the lives of patients with rectal and bladder lesions (such as rectal cancer, bladder cancer, intestinal obstruction, etc.), doctors surgically remove the patient's lesions At the site of the stoma, an opening is opened on the left or right side of the patient's abdomen. The patient's excrement (stool or urine) is discharged from the body through the stoma, and a bag is attached to the stoma to contain the excrement. Medically, this type of The number of "ostomy patients" in my country has reached one million. The first Saturday in October is designated as World Ostomy Day by the International Ostomy Association (IOA). It is held once every three years. The Ostomy Clinic of Jiangsu Provincial People’s Hospital recently held the “2009 Ostomy People New Year’s Party”. Nearly a hundred ostomy patients and their families from Nanjing participated in the event to share about “Ostomy”. The "sadness and joy" in the life of "ostomy patients" also gives everyone an opportunity to deeply understand the life of "ostomy patients".

The "normal life" of a 13-year-old cancer-age "ostomy patient"

Mr. Hu, who is 69 years old this year, was diagnosed with "rectal cancer" in 1997 and underwent "rectal and anal resection plus enterostomy surgery". After the operation, due to changes in life and hygiene habits, his quality of life was very poor. Just after eating, a large amount of excrement erupted from his intestines, which he couldn't control at all. He was once very depressed and pessimistic, and even had the thought of "life would be worse than death".

Recalling that time, Mr. Hu. I can’t help but feel that it was the constant care of his family and the repeated encouragement and love from the medical staff that helped him gradually get through the period of depression and regain the courage to live. Now, while enjoying retirement life, Mr. Hu has also become a mature person. He has become a good doctor and friend to many "ostomy" patients. As the vice president of the Ostomy Association of Cancer Hospitals, he has also traveled to various places to guide more ostomy patients and their families on their daily life and diet, and to teach them ostomy care experience. , helping them adjust their emotions, and now they have become a "celebrity" among Nanjing's ostomy patients.

Mr. Hu said that after so many years of ostomy journey, what he feels most deeply is the ostomy. First of all, people must be in good spirits, put down the burden of "cancer", and treat themselves as a normal person. Secondly, they must take good care of their mouths, especially patients with enterostomy, who must eat "regularly and quantitatively", with a reasonable mix of meat and vegetables, and maintain good nutrition. It is especially important that "ostomy people" should actively integrate into normal life and work. Once they have mastered the treatment of stoma, they should travel when they need to travel and work when they need to work. Never close yourself off. , communicate more with family, hospital, and friends, and live happily and confidently.

57-year-old "ostomy man" overcomes disease and returns to school to teach

30-year-old Mr. Zhang. He came to attend the social event on behalf of his mother. Mr. Zhang told reporters that his 57-year-old mother was diagnosed with late-stage bladder cancer at Jiangsu Provincial People's Hospital in 2007 and had to undergo cystectomy and urethrostomy because his mother was a university professor. , had a very high self-esteem and could not accept the post-operative life with an ostomy at first. He refused the doctor’s surgical advice several times and even threatened his children and wife with suicide. Mr. Zhang and his family were very sad at the time. They searched for information about ostomy on the Internet all day long, and constantly tried to convince his mother. With the help and guidance of the urology staff, the old professor finally agreed to the operation.

However, the mother after the operation was still unable to accept life with an ostomy at the beginning. She was afraid of looking at her "ostomy". She became very inferior and was unwilling to let her family help her even go to the toilet and take a shower. For a period of time, my mother had missing urine bags in the middle of the night four times in a month. Her family took a taxi overnight to take her to the hospital to change the bags, and called head nurse Li Huazhu to ask "what to do." Nurse Li never complained about this. No matter how late it was, she personally helped change the ostomy bag and deal with the dirt. She also helped the mother disinfect and clean up the red and swollen skin and stoma. In winter, she was afraid that her cold hands would irritate her stoma, so she warmed her hands before putting them on her mother's body, and gently asked her mother if it hurt. After the stoma was cleaned, she gently placed the hands of our family members on the stoma and let the family members feel the appearance of the stoma. This behavior moved my mother to tears. The medical staff at the hospital told us that the love of family members is the source of helping people with ostomates regain confidence in life. My mother finally let go of her long-standing guard and faced life with an ostomy together with her family.

Although my mother still cannot mention the "ostomy surgery" to outsiders, with the deep love and care of her family, my mother has gradually returned to her original mental state, dressing up neatly every day, and not long ago again Back to campus. My mother said more than once, "When I was sick before, I had no chance to stand in class. Now that I can return to campus and class, I should cherish it, and my life seems to be reborn."

Expert: "People with ostomates" can also have normal sex life

As one of the two professional ostomates at the "Ostomy Clinic" of Jiangsu Provincial People's Hospital, Li Huazhu said, "Ostomy patients" As the name suggests, "oral people" are people whose normal excretory channels of the human body have been removed due to disease or other reasons and changed to "intestinal excretion". Most of these people are patients after surgery for rectal or bladder cancer. 70% to 80% of these patients will have varying degrees of psychological disorders in the early stages, such as low self-esteem, self-abasement, and some even have suicidal tendencies.

Nowadays, the number of people with "ostomies" in our country is increasing by 100,000 every year, and there are currently only more than 200 professional ostomates in China. The huge medical demand can be seen from the "ostomy clinic" opened by our hospital in 2005. This can be seen in the annual outpatient volume and busyness of more than 2,000 people. Doctors and nurses in the outpatient clinic of Jiangsu Provincial People's Hospital can provide continuous care for patients shortly after discharge, guide patients in the correct selection of ostomy supplies at different times, provide relevant knowledge education and guidance to patients and their families, and deal with common ostomy problems. Oral complications and psychological support are provided to relieve patients' anxiety, depression and other emotions. However, more people with ostomates urgently need the guidance of professional ostomates and care from family and society.

For example, Li Huazhu said that as more and more ostomy patients gradually accept "post-ostomy life", some patients have begun to pay great attention to their quality of life. There was once a family member of a 40-year-old male patient who had undergone rectal cancer surgery at the stoma clinic. He quietly asked me, "How long will it take for us to have a normal sex life after surgery?" I think such patients and family members are very worried. Well, they have normal needs for this, which means they have the confidence to accept "ostomy life". I told them, "You can have sex after the wound has healed and your physical strength has recovered about 3 months after the operation." Immediately, the eyes of the family members showed a smile that rekindled their hope for life.

According to the reporter’s understanding, Jiangsu Provincial People’s Hospital will also establish a “Jiangsu Provincial People’s Hospital Ostomy Person’s Home” to provide a platform for the majority of ostomy patients and between ostomy patients and medical staff. A platform for communication and exchange. Let them feel the caring service and sincere care of medical staff, and help them master effective methods to promote physical and mental recovery and improve the quality of life, thereby improving the quality of life of people with ostomies and allowing more ostomy patients and their families to bravely face life with ostomies. Society should also provide more care and help to ostomy patients so that they can regain confidence and hope for a happy life.